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Anderson A, Getz KA. Insights and Best Practices for Planning and Implementing Patient Advisory Boards. Ther Innov Regul Sci. 2018 Jul;52(4):469-473.

Arumugam A, Phillips LR, Moore A, et al. Patient and public involvement in research: a review of practical resources for young investigators. BMC Rheumatol 7, 2 (2023).

Belisle-Pipon J-C, Rouleau G, Birko S. Early-career researchers' views on ethical dimensions of patient engagement in research. BMC medical ethics 2018;19(1):21-21.

Beresford P, Russo J. Patient and public involvement in research. In: Nolte E, Merkur S, Anell A, editors. Achieving person-centred health systems. Cambridge: Cambridge University Press; 2020. p. 149–52.

Bombard Y, Baker GR, Orlando E, et al. Engaging patients to improve quality of care: a systematic review. Implement Sci. 2018 Jul 26;13(1):98.

Brett J, Staniszewska S, Mockford C, et al. A systematic review of the impact of patient and public involvement on service users, researchers and communities. Patient. 2014;7(4):387–95.

Christiansen MG, Jarden M, Bager L, Mirza MR, Pappot H, Piil K. Systematic nurse-led consultations based on electronic patient-reported outcome among women with ovarian- or endometrial cancer during chemotherapy - protocol for the CONNECT study. Acta Oncol. 2022 May;61(5):602-607.

Crocker JC, Ricci-Cabello I, Parker A, et al. Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis. BMJ. 2018 Nov 28;363

Danske Patienter. Inddragelse i forskning. Tilgængelig her: https://danskepatienter.dk/vibis/organisatorisk-inddragelse/inddragelse-i-forskning

Dengsø KE, Lindholm ST, Herling SF, et al. Patient and public involvement in Nordic healthcare research: a scoping review of contemporary practice. Res Involv Engagem 9, 72 (2023).

European Patient’s Forum - The Value+Handbook. Tilgængelig her: https://www.eu-patient.eu/

Finderup J, Buur LE, Tscherning SC, et al. Developing and testing guidance to support researchers engaging patient partners in health-related research. Res Involv Engagem. 2022 Aug 26;8(1):43.

Fox G, Lalu MM, Sabloff Tet al. Recognizing patient partner contributions to health research: a systematic review of reported practices. Res Involv Engagem. 2023 Sep 9;9(1):80.  Goedhart, N.S., Pittens, C.A.C.M., Tončinić, S. et al. Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search. Res Involv Engagem 7, 59 (2021). 

Greenhalgh T, Hinton L, Finlay T, et al. Frameworks for supporting patient and public involvement in research: systematic review and co-design pilot. Health Expect. 2019;22(4):785–801.

Hansen TK, Jensen AL, Damsgaard EM et al. Involving frail older patients in identifying outcome measures for transitional care—a feasibility study. Research involvement and engagement. 2021;7(1):1-36.

International Collaboration for Participatory Health Research. Tilgængelig her: http://www.icphr.org/

Job description: National Institute for Health Service. 2017. Starting Out. Essential information for members of the public getting started in involvement in research. Tilgængelig her: https://www.invo.org.uk/wp-content/uploads/2018/01/Induction-public-v3.pdf

Karlsson AW, Kragh-Sørensen A, Børgesen K, et al. Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research. Res Involv Engagem 9, 43 (2023).

Ludwig C, Graham ID, Lavoie J, et al. Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review. Research Involvement and Engagement 2021;7(1):8-8.

Modigh A, Sampaio F, Moberg L, Fredriksson M. The impact of patient and public involvement in health research versus healthcare: A scoping review of reviews. Health Policy. 2021 Sep;125(9):1208-1221.

National Institute for Health and Care Research. Tilgængelig her: https://www.nihr.ac.uk/

Nielsen MK, Sandvei M, Hørder M. Forskerens perspektiver på patientindragelse i forskning. Ugeskr Laeger. 2018 Nov 5;180(45):V06180416.

NIHR, Briefing notes for researchers, April 2021. Tilgængelig her: URL: https://www.nihr.ac.uk/documents/briefing-notes-for-researchers-public-involvement-in-nhs-health-and-social-care-research/27371

Patient Centered Outcomes Research Institute. Tilgængelig her: https://www.pcori.org.

Patient-Oriented Research. Tilgængelig her: https://cihr-irsc.gc.ca/e/41204.html

Rodkjær LØ, Skovlund P, Finderup J, Petersen AP, Kristensen AW, Toft BS, Rasmussen GS, Buur LE, Rolving N, Vedelø TW, Jensen AL. Involvering af patienter i forskningsprocessen. Ugeskr Laeger. 2024 Jul 1;186(27):V10230668.

Rogers, M., Bethel, A. and Boddy, K. (2017), Development and testing of a medline search filter for identifying patient and public involvement in health research. Health Info Libr J, 34: 125-133. 

Sacristán JA, Aguarón A, Avendaño-Solá C, et al. Patient involvement in clinical research: why, when, and how. Patient Prefer Adherence. 2016 Apr 27;10:631-40.

Schoemaker CG, Richards DP, de Wit M. Matching researchers' needs and patients' contributions: practical tips for meaningful patient engagement from the field of rheumatology. Ann Rheum Dis. 2023 Mar;82(3):312-315.

Skovlund PC, Nielsen BK, Thaysen HV, et al. The impact of patient involvement in research: a case study of the planning, conduct and dissemination of a clinical, controlled trial. Res Involv Engagem. 2020 19;6:43.

Skovlund, P.C., Finderup, J., Aabo, S. et al. Recommendations for successful involvement of patient partners in complex intervention research: a collaborative learning process. Res Involv Engagem 10, 3 (2024).

Smits DW, van Meeteren K, Klem M, et al. Designing a tool to support patient and public involvement in research projects: the Involvement Matrix. Res Involv Engagem. 2020;6:30.

Staniszewska S, Brett J, Simera I, det al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017 Aug 2;358:j3453.

Vinnicombe S, Bianchim MS, Noyes J. A review of reviews exploring patient and public involvement in population health research and development of tools containing best practice guidance. BMC Public Health 23, 1271 (2023).

PhD kurset "Patient and public involvement in health research" afholdes på AU hvert efterår.

En arbejdsgruppe under Forskergruppen for Involvering af patienter i forskning på AUH har udviklet indholdet i læringsplatformen i samarbejde med Implementeringsgruppen for strategisporet i forskningsstrategien “Sammen forsker vi med og for alle patienter”.

Arbejdsgruppen bestod af

• Lotte Ørneborg Rodkjær
• Jeanette Finderup
• Pernille Skovlund
• Annesofie Lunde Jensen
• Bente Skovsby Toft
• Tina Wang Vedelø
• Anne Poder Petersen
• Anne Wilhøft Kristensen
• Louise Engelbrecht Buur
• Gitte Susanne Rasmussen.

Kontaktperson:
Lotte Ørneborg Rodkjær
E-mail: lottrodk@rm.dk